Neurodevelopment, Advocacy & Heart Families

The throughline of this conversation is simple and urgent: Congenital Heart Disease is not only about hearts. It is about brains, emotions, classrooms, and families learning a new language overnight. We open with the “Kitchen Table” idea—stories as living wisdom that bridges facts and life. That frame matters because parents are drowning in information yet starving for guidance. Digital storytelling gives shape to experience, turning scattered moments into a map others can follow. Across three parent narratives and two organizations, we hear the same plea: translate neurodevelopment research into everyday help, and do it early, locally, and with compassion.